
I was referred to Dr Cregg for continuing pain after endometriosis surgery. He examined me and told me that I could ask to stop at any time. When the examination became painful I forgot how to ask him to stop, so he didn’t. Afterwards he did apologise for it being painful. The room at the Fortius did not feel set up for intimate exams.
I had emailed his secretary some of my previous notes, which she confirmed she had received, but Dr Cregg did not have access to them at my appointment. He said he wanted to coordinate with the other specialties I was under regarding ongoing investigations, then didn’t. He said that bloating and distension are the same thing, but they are not.
He wanted to refer me for an MRI to check for any issues with muscles or nerves, including endometriosis. He said we could discuss my questions later then took me to sign forms and disappeared, it was really unclear that was the end of the appointment. I was told when I booked that the first appointment would be 50 minutes, but in total it was maximum 30 minutes.
I was then told by his secretary when to book an appointment to follow up with the results. The working day before, his secretary emailed me (not phoned) to cancel the appointment as my MRI had not yet been reported on. I had already booked a follow up appointment with my gynaecologist the afternoon of this planned appointment to discuss Dr Cregg’s findings, which I could now not change without being charged as I saw the email less than 24 working hours before.
I told his secretary that my insurance plan was changing and I really needed the MRI results beforehand to have time for any potential treatment / surgery to still be covered. It was a lot of hassle to get the report, and when I eventually did see Dr Cregg he said I needed to follow up with my gynaecologist (again) to discuss one of the findings.
He was late to the follow up appointment because he had double booked the slot, which he did apologise for. I told him the pain and vomiting were getting worse and felt unmanageable on my current medications. He told me to stop taking opioids and that he would never have prescribed them in the first place (which my other doctors disagreed with since I was only using them for flare ups); that he didn’t think I should start neuromodulators but didn’t explain why (several doctors wanted me to, I am now on a low dose for gastro issues and find it helpful); that I needed to use less heat for the pain; that pain can cause nausea and vomiting but he wouldn’t advise on antiemetics and to ask gastro instead (who then said that wasn’t her area either). He said the pain was from myofascial pain syndrome affecting the pelvic floor, with hormones causing flare ups. He didn’t listen when I said the pain he found felt very different to my flare up pain.
He wanted me to do pelvic physio, which I’d already recently finished treatment with and my physio said she had checked the same areas he found to be painful. He said this could be with or without pelvic floor injections. I told him I didn’t feel I had enough information to decide, to which he replied that I had this conversation (?), the letter, and I could book an additional appointment if I wanted - I’m unsure how this would’ve helped. When I received the letter it said the injections were CT guided and done under sedation, which he had not mentioned. Later when I spoke with my insurance they wanted to know why the sedation was necessary, which I could not answer.
He uses some sort of AI assistance during appointments but doesn’t explain beforehand. Both my letters have several mistakes. He did emphasise in the letter that his diagnosis was separate from endometriosis in order for my insurance to cover treatment for me.
I tried removing my IUS and have had no pain or vomiting since. My gynaecologist now thinks the IUS was causing my flare ups. So I don’t believe Dr Cregg’s treatment plan would’ve worked. I have since seen another pelvic physio for a second opinion who said since I now have no pain, she doesn’t think I should pursue his treatment plan. I have not been able to reproduce the pain from his examination, so she thought possibly I was nervous and tense in his appointment.