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Prof. Hector Chinoy

Rheumatologist

appreciated the opportunity to see Professor Chinoy and I recognise his substantial expertise in rheumatology and inflammatory muscle conditions. He was polite, clear, and reassuring in his manner. However, I left the appointment feeling that some key parts of my longitudinal history were not fully integrated into the assessment. Despite having uploaded all my scans from 2021, 2022, and September 2025, these were not able to be reviewed together during the consultation because the files were not opened on the system. This meant we were unable to discuss the progression pattern across the years — including the shift from right-sided abnormalities (fatty infiltration in 2021, right psoas sheath oedema in 2022, and right paraspinal inflammation in May 2025) to the newly emergent left-sided oedema in September 2025. This remains one of my main concerns, and I had hoped to go through it as a connected clinical story. I also felt somewhat discouraged when the peer-reviewed publications I mentioned — particularly the Brain journal review “Axial Myopathy: an overlooked feature of muscle diseases” — were dismissed as unhelpful for patients to read. I fully understand the concern about online searches, but the review is a major academic paper describing: • axial myopathy being frequently misattributed to spinal degeneration, • seronegative inflammatory myopathies, • cases where paraspinal involvement is the earliest or only manifestation, and • the consistent issue that MRI abnormalities in the paraspinal muscles are under-recognised by non-neuromuscular specialists. These points felt directly relevant to my pattern of findings, particularly as my bloods have remained seronegative and several consultants have attributed the MRI abnormalities mainly to spinal wear-and-tear — something the paper specifically warns can lead to under-diagnosis. I appreciate that Professor Chinoy believes the fatty infiltration and oedema are most likely secondary to spinal changes. However, this does not fully account for: • the right-to-left progression seen on imaging, • the severe nocturnal pain and inability to turn in bed, • the sudden onset bilateral hand pain, stiffness and locking, • the persistence of symptoms despite minimal radiological change in the spine over four years, and • the coexistence of Hashimoto’s disease, which rheumatology felt was irrelevant despite autoimmune diseases sometimes clustering. I am grateful that he has arranged for radiology to re-review the entire MRI set, and I appreciate this very much. However, the consultation left me feeling that many parts of my history and symptoms remain unexplained, and that the published evidence on axial/paraspinal muscle disease — especially in seronegative patients — was not fully considered.

Mr Luke Cascarini

Oral & Maxillofacial Surgeon

Dear Team, Thank you for reaching out. I am more than happy to provide feedback, as my experience at Harley Street Specialist Hospital has genuinely changed my life. I want to say how incredibly grateful and eternally indebted I am to my surgeon, Mr Luke Cascarini. He has given me a completely new lease of life. He is not only an outstanding surgeon but an exceptional human being, and I cannot thank him enough for the care, precision, and compassion he showed throughout my entire journey. I would also like to express my heartfelt thanks to Janet, Dr Bosh, and all the nursing staff, as well as every member of the team right down to the wonderful ladies on reception, including Marianne. There are too many to name individually, but every single person played a role in making this experience extraordinary. The hospital itself does not feel like a hospital at all — it feels more like a health retreat where you leave as a better version of yourself. The environment, the warmth, and the standard of care are truly exceptional. For anyone suffering from sleep apnea, as I was, or dealing with any of the conditions treated by your specialists, I could not recommend HSSH and Mr Luke Cascarini more highly. You have all transformed my life in ways I cannot properly put into words. Thank you, sincerely, for everything. Warm regards, Mr Shefik

Delamere: Private Rehab Clinic & Addiction Treatment

Holistic Therapy, Psychiatry, + 1 more

Wow, what an amazing place with a holistic approach to recovery. Far from previous experiences that simply provide a detox and a few tools tacked on the end. Delamere provides any willing individual the opportunity to explore yourself and a way of life that can truly bring balance and happiness. The food was excellent, home cooked with minimal processed food, probably only the tofu as the vegetarian option was processed, along with bacon and sausage for breakfast. Chefs were very approachable and friendly, even gained some advice on what to cook at home. The overall environment was clean, tidy and well maintained. The liaison team were excellent and always on hand to support and guide when needed.The nursing team were also superb, always there to answer any medical questions in a compassionate way. The mentors provided clear direction without judgement or bias. My therapist was second to none and created a safe environment for me to discover myself, while always being there to catch me when I stumbled. All in all a life changing experience. I have left with a solid toolset and aftercare package that will steer me through a joyful life with my friends and family. Only negative was the insane temperature in the bedrooms…..bring some cool PJs.

The Female Health Doctor MK

Diagnostics & Testing, General Practice (GP), + 1 more

I had my suspicions as to what was happening to me. However, going down the general NHS GP route was not getting me anywhere. They kept treating each symptom individually rather than looking at me as a whole. A few years of going backwards and forwards. Stress! With Dr Nikki, within the 30 minute consultation I felt heard, all symptoms were put together and a treatment plan was formed. It all made sense and everything was explained. Medication prescribed and ordered, report received and a report sent to my own GP, all within a few hours. Future follow up already booked. That is what you call professionalism, efficiency and having very knowledgeable doctors who understand the female body. Wish I had booked them sooner. I would highly recommend them.

Nuffield Heath Cardiff Vale

Breast Surgery, Cardiology, + 20 more

We recently visited Nuffield Vale of Glamorgan for my son’s squint surgery under the care of Dr Jewsbury. The whole experience was excellent from start to finish. Communication was clear, reassuring, and consistent, and every member of the team went out of their way to make sure my son felt safe and supported. Dr Jewsbury’s care, both on the day and in the weeks that followed, was exceptional. The results have surpassed our expectations and have been genuinely life-changing for my son. We are so grateful for the professionalism, kindness, and attention we received throughout. Highly recommended.

Mr Abdul Gaffar Dudhniwala

Orthopaedic Surgeon

I had an excruciating L4/5 disc prolapse & Mr Dudhniwala help me managed months of pain first through an epidural and then ultimately a discectomy. Throughout he was very patient throughout and explained every part of each procedure and my condition and took the time to allay any concerns I had around recovery. I’m 2 months post-op now and I’m in the best physical space Ive been in for years and the wound also healed up very quickly. If there were the options for more stars, I’d give them! I never want to see him again but highly recommend his services for anyone suffering like I was. Thanks doc!

Professor John Axford

Rheumatologist

Professor Axford is clearly a highly experienced specialist and provided me with a very comprehensive verbal and physical examination, support and advice. I was really in a great deal of pain and my lifestyle was deteriorating drastically. Prof Axford took these points into his assessment and provided immediate advice and treatment which has turned me around! As I learn more about PMR, I really appreciate that his life long professional experience in this area of work and will continue to learn from his guidance, as am sure many others have benefited. Thankyou so much.

Dr Sonal Singh

Dermatologist

I was worried about some moles and my GP suggested I checked them out. Dr Singh was welcoming, reassuring and thoroughly professional. I found her incredibly easy to talk to and she quickly put me at ease. She thoroughly checked my skin, quickly diagnosed the problems and thankfully, all was well. She has clearly a lot of knowledge and experience and I felt very lucky to have a consultation with her. I cannot thank her enough and thoroughly recommend her.

Knightsbridge Doctors

General Practice (GP), Imaging (Scans), + 5 more

My experience at Knightsbridge was truly exceptional. I arrived early but the team was delighted to let me wait comfortably in the warm. When I was ready to be seen, I was greeted by Dr Michael Smith. His friendly and welcoming nature instantly put me at ease, even though I was already feeling anxious. The medical exam was done with professionalism and Dr Smith talked to me throughout which I appreciated. I can not express my gratitude enough.

Candover Clinic

General (Internal) Medicine, Physiotherapy, + 19 more

Very clean and nice waiting area, the coffee & biscuits are much nicer than the Hampshire Clinic. Reception stall very helpful and efficient. The Polish lady who undertook the ECG was excellent, very helpful and explained what was to be done. With the excellent parking area, coffee & biscuits the whole experience was very pleasant. In addition Dr Bowers was very informative, clear on the results etc. Thank you

The London Independent Hospital (part of Circle Health Group)

Gastroenterology, Dermatology, + 8 more

I had a wonderful experience at the hospital during my recent hernia surgery. The staff were incredibly friendly and made me feel comfortable from the moment I arrived. The environment was spotless and well-organised, which gave me real peace of mind. Everyone I interacted with was professional, caring, and genuinely fantastic. I’m very grateful for the excellent care I received.

Dr Surya Panicker Rajeev

Diabetes & Endocrinology Specialist

Dr Rajeev was so lovely and put my mind at ease, talked me through blood levels she would expect ect. I had bloods taken today to save me driving back over to get them done another time. Dr Rajeev made me feel heard, reading all the notes I had prepared. I was talked through the steps that would be taken ect. Very happy with my appointment

Mr Mujahid El-Deen

Orthopaedic Surgeon

My visit to Nuffield Chesterfield Hospital Clifton Bristol was all very good - after filling in questionnaire form I was seen within 20 minutes around my appointment time and the consultant was very clear and concise about treatment and diagnosis and an operation appointment was booked quickly . Very happy with overall experience

Spire Fylde Coast Hospital

Breast Surgery, Cardiology, + 10 more

My initial visit was for trigger thumb release surgery. The waiting time following arrival was minimal. The bedroom was comfortable and clean. The surgery itself was amazing despite being anxious - the team were very friendly and focused on making you relax. The aftercare visit was in line with this.

Miss Libby Horton

Psychologist

Was very patient, understanding and helpful providing prompts to keep things on track. I can ramble on a bit but was clear in the goals and times. Smiley and friendly too which helped feel at ease. Made sure I knew the next steps and offered chance to ask questions at the end. Thank you Libby :)

Chase Lodge Hospital

Cardiology, Dentistry, + 7 more

The staff were first class putting me at ease as soon as I walked through the door . I visited urgent care it was only minutes before I saw the dr he was very friendly and knowledgeable I was treated and on my way home in 30 minutes